Qualitative results from a phase II pilot randomised controlled trial of a lymphoma nurse-led model of survivorship care

This exploratory, qualitative descriptive study investigated lymphoma survivors thoughts and perceptions on a nurse-led lymphoma survivorship clinic (NLSC). 10 participants who had transitioned post-treatment into the survivorship phase via the survivorship clinic intervention were interviewed. Three major themes were identified: reassurance and individualised care; information and support; and empowerment. Patients described having time within the NLSC to ask questions and seek individualised support as fundamentally helpful. In addition, survivorship care plans provided disease and treatment knowledge which empowered participants and allowed them to assume responsibility for their future health and well-being. This study highlights the need for patient-centered follow-up care, and should be incorporated into post-treatment survivorship care for lymphoma cancer survivors.

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