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Consumer and clinician perspectives on personalising breast cancer prevention information

This qualitative study aimed to determine the interest that women at ≤ moderate risk of breast cancer have in personalised information and the familial cancer clinicians’ (FCCs) perspective on managing this subset of women. Additionally, it evaluated both consumers’ and FCCs reactions to iPrevent, a personalised breast cancer risk assessment and risk management decision support tool. Seven focus groups were carried out, consisting of 49 participants. Thematic analysis found that consumers had low trust in primary care practitioners for breast cancer prevention advice and frustration that they often lacked tailored advice about breast cancer risk. They expressed interest in receiving personalised risk information using iPrevent. FCCs described an inadequate workforce to advise women at ≤ moderate risk, but reacted positively to the potential of iPrevent to assist. This study showed that for personalised prevention of breast cancer to extend beyond women at high risk, we must harness women’s interest in receiving tailored information about breast cancer prevention and identify a workforce willing to advise women.

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