Joint Community Advisory Group

The PC4 and PoCoG Joint Community Advisory Group (JCAG) provide advice on research directions and priorities from a consumer perspective.


Elle-Ackland

Elle Ackland

Location: QLD
My Contribution: Elle is the Manager of Human Resources Business Partnering at Children’s Health Queensland Hospital and Health Service. Elle is passionate about achieving positive workplace relationships for both the employer and employee, and has a special interest in supporting ill and injured workers to return to the workplace.

Louise Bailey

Location: NSW
My Contribution: Louise has a background in governance, government liaison and human resource management in the non-government education sector and has always been a keen advocate of evidence based best practice. Louise believes strongly that high quality research is what will make a difference to the lives of those living with cancer, their families and carers, now and in the future. She also believes that everyone involved in a person’s cancer experience has an important role to play in enhancing that person’s experience and that consultation and collaboration are paramount to achieving this.

Nikki-Davis

Nikki Davis

Location: VIC
My Contribution: Nikki is a breast cancer survivor who would like to see more people living well with their cancer. In addition to her own cancer experience, she is aware of those of many others through her work as a peer support volunteer with women experiencing breast and gynaecological cancers. Nikki works in book publishing.

 

Claire Ewart-Kennedy

Location: NSW
My Contribution: Claire is a born and bred country girl hailing from northern NSW and lives with the mantra “it takes a village” as a proud mum to 3 young adults. Claire has an ATCL and LTCL in Speech & Drama from Trinity College London, Bachelor of Arts Media & Comms and a Masters in Social Investment and Philanthropy. She has worked in both State and Federal politics and continues to work in federal politics. She and her husband run an inner city Melbourne based sales and marketing promotional company where the hashtag #rememberitsallaboutthetrophies is king along with numerous rapidly expanding agricultural interests. Collingwood and Manchester United are her colours!


George Fishman

Location: NSW
My Contribution: Cancer survivor

Julia-Marker

Julie Marker

Location: SA
My Contribution: Julie has gained a consumer’s perspective from being a 3 times metastatic colon cancer survivor and a 2 times secondary liver cancer survivor. Julie previously worked as a clinical trial coordinator, and has worked with Divisions of General Practice mostly in rural South Australia. These life experiences have given Julie an insight into ’both sides’ of the research picture, enabling her to recognise the challenges and opportunities.

Celia Pavelieff

Location: NSW
My Contribution: Celia’s contribution to JCAG draws together her experiences in her personal and professional lives, stronger, simpler and clearer communications to assist JCAG’s objectives.

Don

Don Piro

Location: SA
My Contribution: Don is a three time bowel cancer survivor who has now been clear for five years. Professionally, Don is an Accredited Mental Health Clinical Social Worker. As a cancer survivor and Health professional, Don wanted to give something back to the community that could utilise both sets of life experiences and skills. Don became involved in various cancer groups which led him to join JCAG. Here he hopes to assist in research that explores the Psychosocial aspects of people travelling with cancer. Don is married with two daughters and three grandchildren, and enjoys cycling, playing golf & chess, fishing and caravaning.

max

Max Shub

Location: VIC
My Contribution: Max is a member of the PC4 and PoCoG Joint Community Advisory Group. He is a qualified pharmacist and a cancer survivor having been diagnosed with advanced prostate cancer 12 years ago. He has a desire to improve the quality of cancer research by bringing an understanding of patients concerns through his extensive involvement with support groups including the Prostate Cancer Support Group network, Prostate Cancer Outcomes Registry Steering Committee, PoCoG SAC, NEMICS Reference Group and Cancer Trials Consumer Network

 

Jason White

Jason White

Location: NSW

My Contribution: Jason is a carer for his wife with breast cancer, lupus and Hashimoto’s. He also supported his mother during bowel cancer and terminal secondary ovarian cancer. Professionally, Jason is a Data Analyst at The University of Sydney. He has a passion for complex systems analysis and the power of information when refined and made user friendly in tools such as cancer treatment decision trees for the benefit of cancer patient outcomes.